The National Chronic Disease Self-Management Education (CDSME) Database, housed in the Center for Healthy Aging, was established in 2010 through support from the Administration for Community Living (ACL).
The database receives information from active ACL Prevention and Public Health Fund (PPHF) CDSME grantees, former grantees, and other organizations interested in tracking data for their evidence-based health promotion and disease prevention programs.
The database is built on the Salesforce platform, and tracks data from host organizations, implementation sites, and participants of the 26 programs listed below. The database can accommodate any recognized health promotion evidence-based program.
Most are small group (10-15 individuals), workshop-based programs offered in locations such as senior centers, area agencies on aging, churches, libraries, hospitals, and other community-based settings. Some programs are one-on-one (e.g., HomeMeds, PEARLS) or self-directed (e.g. Tool Kit for Active Living with Chronic Conditions). The Database offers powerful data visualizations using Power BI to track program activity, assess demographic reach, compare local performance against national averages, export data, and examine differences by partner sites, program type, and region.
Programs Caputred in the Database
|Active Living Every Day||Health Coaches for Hypertension Control|
|Arhtritis Foundation Aquatic Program||Healthy IDEAS|
|Arthritis Self-Management Program||HomeMeds|
|Better Choices, Better Health||Positive Self-Management Program|
|Camine Con Gusto (Self-directed)||Programa de Manejo Personal de la Diabetes|
|Cancer: Thriving and Surviving||Tomando Control de su Salud|
|Chronic Disease Self-Management Program||PEARLS|
|Chronic Pain Self-Management Program||Screening, Brief Intervention, and Referral to Treatment|
|Diabetes Self-Management Program||Toolkit for Active Living with Chronic Conditions|
|EnhanceFitness||Walk With Ease (in-person)|
|EnhanceWellness||Walk With Ease (Self-directed)|
|Fit & Strong!||Wellness Recovery Action Plan|
|Geri-Fit Strength Training Workout for Older Adult||Workplace Chronic Disease Self-Management Program|
As of November 2020, the Database is in wide use by many networks, or grantees, representing groups or organizations working collectively to deliver evidence-based programs.
Program workshops entered in the database represent virtually all U.S. states. Since 2010, a total of 39,052 workshops were entered into the Database.
Data is collected and tracked at the workshop and participant level. Fields available in the database include those approved for inclusion in the required data collection tools for active ACL grantees, as well as optional items added by NCOA in response to users’ requests.
Workshop level data includes program name, languages in which the program is delivered, participant leader information, and location site and type. Organizations can also report on various participant satisfaction items, record the funding source and format (e.g. online, hybrid, in person), and assess overall well-being at baseline and post-test.
Participant demographics collected include: age, gender, living along, and race/ethnicity.
Health and disability related variables are:
- Limitations due to disabling condition
- Deaf or blind
- Self-rated health
- Caregiving status
- Confidence managing chronic health conditions (at post-test only)
- Chronic health conditions
- Provider referral
- Health insurance
- Cognitive health
The CDSME data collection tools were revised and approved in December 2019. The table below summarizes the participant data collected as of November 2020, representing 424,159 participants.
|CDSME||General Older Adult Population|
|Average Age||66 years||N/A|
Native Hawaiian/Pacific Islander (<1%)
American Indian (2%)
Native Hawaiian/ Pacific Islander (.1%)
American Indian (.5%)
|Education||54% have some college or higher||30%|
|In Poor or Fair Health||20%||22%|
Two or More Chronic Conditions
|Top Chronic Health Conditions||
Arthritis/Rheumatic disease (37%)
Heart disease (14%)
Ischemic heart disease (29%)
|Referred by Physician||17%||N/A|
|Confidence Managing Chronic Condition After Workshop||8 out of 10||N/A|
NCOA regularly mines the database to answer important and timely questions from the Administration for Community Living and others to inform program planning and policy activities. In addition, NCOA partners with research institutions to conduct rigorous research studies to learn more about the reach, impact, and cost-effectiveness of evidence-based programs. Data collected on CDSME program activity have been the source of extensive research and evaluation activity, with findings shared in presentations at professional conferences and peer-reviewed publications. To learn more, visit the research page.
Research partners interested in exploring the data are invited to complete a Data Use Agreement, which requires a description of the research objectives, discussion with CHA staff, and IRB documentation before it is finalized.
Current research projects include examination of the predictors of program completion and overall reach among participants with functional impairment, caregivers, racial/ethnic minorities, rural populations, and participants with various comorbidities. Other special analyses will look at variation in performance and unique challenges of delivering CDSME programs in health care settings, as well as residential settings, such as assisted living facilities and low-income senior housing.